From Diagnosis To Daily Life: Adolescents Navigating Psychosocial Challenges in Type 1 Diabetes – A Qualitative Study


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KERİMOĞLU YILDIZ G., Ates Besirik S., AZAK M.

Journal of Child and Family Studies, 2026 (SSCI, Scopus) identifier identifier

  • Yayın Türü: Makale / Tam Makale
  • Basım Tarihi: 2026
  • Doi Numarası: 10.1007/s10826-025-03256-z
  • Dergi Adı: Journal of Child and Family Studies
  • Derginin Tarandığı İndeksler: Social Sciences Citation Index (SSCI), Scopus, CINAHL, Criminal Justice Abstracts, Education Abstracts, Psycinfo, Public Affairs Index, Violence & Abuse Abstracts, Social Sciences Abstracts
  • Anahtar Kelimeler: Adolescence, Chronic disease, Disease management, Type 1 diabetes mellitus
  • Hatay Mustafa Kemal Üniversitesi Adresli: Evet

Özet

The diagnosis of type 1 diabetes mellitus (T1DM) introduces significant challenges for adolescents as they navigate disease management. However, there is limited data on the psychosocial challenges, coping strategies and perceived stigmatization of adolescents who are recently diagnosed with T1DM. This study aimed to explore the disease management experiences of adolescents (aged 12–18 years) recently diagnosed with T1DM, with a focus on the psychosocial challenges encountered during the adjustment period and the coping strategies employed in the early stages after diagnosis within the cultural context of Turkey. This phenomenological qualitative study employed semi-structured interviews with 14 adolescents receiving follow-up care for T1DM. Data were analysed using qualitative thematic analysis approach. Six major themes emerged from the analysis: (1) emotional adjustment to chronic disease for adolescents and their parents, (2) fear of future limitations, (3) challenges and supports in adaptation and coping, (4) imposed/voluntary isolation, (5) fear of social judgment/stigma and feeling misunderstood, and (6) peer support. Despite advances in treatment, adolescents and their parents continue to face psychosocial challenges in the transition from childhood to adulthood. Parental support plays a critical role in adolescents’ self-management efforts, and peer support is essential during this period. Healthcare professionals, clinicians, and diabetes educators should actively promote peer support networks for adolescents with diabetes. This study highlights the importance of health professionals providing psychosocial support in adolescent diabetes management. Promoting peer support groups can reduce social isolation and improve adherence. In addition, strengthening family-centred care approaches can contribute to the long-term well-being of both adolescents and their families.